Yesterday was a big day for us. After ultrasounds, X-rays, blood draws,
CT scan, biopsy surgery, bone scan and MRI we were finally able to get
more specifics on the degree of Audrey's disease. We were already
confident from the doctors initial impressions that she has
neuroblastoma but the big questions were- where has it spread and does
she have the indicators that would put her in the high risk category.
(High risk requires much more aggressive chemo and surgery and is not
nearly as bright of an outlook). Before Audrey got back to her room from
the bone scan and MRI (she had to go under anesthesia for the third day
in a row) our four doctors came in to give us some news. Audrey did not
fall into the high risk category. There was no indication that it had
spread to her bones or bone marrow and the mass by her spine does not
currently threaten her spinal cord. This is the best scenario for
Audrey. They laid out the plan for Audrey's chemotherapy and subsequent
surgery which if all goes as planned will take place some time in
November-December. Initially they told us she would get another 4 rounds
of chemo after surgery. About 10 minutes later one of our doctors came
back to say that her cancer cells divide in a way that makes them more
responsive to treatment and she likely won't need the additional 4
rounds after surgery. More good news! As he was telling us, the nurses
brought us back our angel who was smiling and ready to eat! We had been
told we might go home yesterday but because Audrey's cancer is growing a
little more quickly they had us stay and we started her medications
late last night. She did beautifully and you wouldn't even know anything
was different. We are prepared for some pretty scary side effects but
are glad we could get started smoothly.
Because of Audrey's history of cardiomyopathy, our cardiologist team
will be working closely with our new oncologist team to make sure her
heart stays strong. (Some of the chemo medications are very rough on the
heart). Right now her heart looks perfect but she will remain on her
heart medication as a preventive measure.
We are in awe of the strength of our baby girl. She has not shown any
changes to her mood (smiling, silly and sassy!) really at all. After her
surgery our baby was groggy but never seemed uncomfortable or in pain.
We know we have a fighter on our hands and we thank God he gave us such a
sweet strong girl.
The current plan is to be home Monday or Tuesday after we have finished our first round. Thank you so so so much for the thoughts, the prayers, and for
supporting our fight to get our Audrey healthy again. We are very
encouraged by all the love for Audrey. We know we are the luckiest
parents to have been given such a gift.
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