Our baby girl is 11 months today!
Yesterday after our third night of chemotherapy medications we were able to bring our punkin home! Now we basically wait at home while Audrey's immune system responds to the meds and recovers before we start the next round. So far we haven't seen much of a change in her attitude which is all we can hope for. She is so happy to be home- crawling and cruising around the house- and so happy to be in her own bed. Unfortunately Audrey's favorite activity-- bath time-- is a bit more challenging with her central line but we are making the most of it. We have to be incredibly careful going forward that Audrey isn't introduced to any new viruses as she won't have the ability to fight them off. We also have to keep her and her line extremely clean so that she doesn't develop any sort of infection. This is perhaps the scariest part of her treatment. Fortunately we don't live far from Children's for our many return visits. She will see her doctors again tomorrow to take labs and check in on how she is responding and will also have a hearing test to determine a baseline as some of the medications can affect her hearing. Thursday we will go in for hopefully our last scan for a little while. This scan will give them a good picture of her affected areas and will also be a comparison for future scans so they can monitor how the cancer is changing.
Once again we are encouraged by the fact that she is receiving treatment at such an amazing hospital. The doctors and nurses, as well as additional support staff, are absolutely incredible. They were all in love with Audrey and I know her doctors were excited, but sad to see her go. She definitely made an impact on all of those she met. One of her cardiologists came by while we were staying there just to say "hi." She was there the night Audrey was admitted to the Cardiac ICU back in October of last year and we have seen her for many of our follow up visits the past several months. She was definitely crushed to see Audrey going through this as I know she has been so encouraged to see her fight against her heart condition.
As if we didn't already appreciate Seattle Children's from our prior experience-- they have so much in place to support families and to just make the nightmare a little more liveable. We have been blown away before and this time certainly hasn't been any different.
We will continue to update after our visits this week and just ask that you pray or think of Audrey as we continue on this unfamiliar road to getting her free of cancer.
Yesterday after our third night of chemotherapy medications we were able to bring our punkin home! Now we basically wait at home while Audrey's immune system responds to the meds and recovers before we start the next round. So far we haven't seen much of a change in her attitude which is all we can hope for. She is so happy to be home- crawling and cruising around the house- and so happy to be in her own bed. Unfortunately Audrey's favorite activity-- bath time-- is a bit more challenging with her central line but we are making the most of it. We have to be incredibly careful going forward that Audrey isn't introduced to any new viruses as she won't have the ability to fight them off. We also have to keep her and her line extremely clean so that she doesn't develop any sort of infection. This is perhaps the scariest part of her treatment. Fortunately we don't live far from Children's for our many return visits. She will see her doctors again tomorrow to take labs and check in on how she is responding and will also have a hearing test to determine a baseline as some of the medications can affect her hearing. Thursday we will go in for hopefully our last scan for a little while. This scan will give them a good picture of her affected areas and will also be a comparison for future scans so they can monitor how the cancer is changing.
Once again we are encouraged by the fact that she is receiving treatment at such an amazing hospital. The doctors and nurses, as well as additional support staff, are absolutely incredible. They were all in love with Audrey and I know her doctors were excited, but sad to see her go. She definitely made an impact on all of those she met. One of her cardiologists came by while we were staying there just to say "hi." She was there the night Audrey was admitted to the Cardiac ICU back in October of last year and we have seen her for many of our follow up visits the past several months. She was definitely crushed to see Audrey going through this as I know she has been so encouraged to see her fight against her heart condition.
As if we didn't already appreciate Seattle Children's from our prior experience-- they have so much in place to support families and to just make the nightmare a little more liveable. We have been blown away before and this time certainly hasn't been any different.
We will continue to update after our visits this week and just ask that you pray or think of Audrey as we continue on this unfamiliar road to getting her free of cancer.
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