October 18, 2013

Well we are now three cycles down in Audrey's treatment. Though we don't want to push out her treatment it was awfully nice to have a weekend off where we pretty much knew her levels were back up and we could get out of the house for a bit.

Friday we took her to the zoo- which if anyone remembers it was totally rainy but that was perfect for us! We bundled up and luckily not many people thought the zoo was a good idea. It was nice and quiet and many of the animals were up close to the glass since they didn't want to be in the rain. It stopped raining not long after we got there and Audrey had such a good time. Sunday we took Audrey to the pumpkin patch for the first time. It was perfect weather and a nice big farm area so we didn't have to worry about being in close contact with everyone. It was such a good "normal" weekend where we could forget about her condition for a little while and just enjoy what we have.

Monday was a short visit. They confirmed her levels were high enough to start the third cycle and we were scheduled to come in bright and early Tuesday morning.

Though our longest day, Tuesday was pretty smooth. We had the best nurse ever- she was sweet as can be and loved playing with Audrey. She also suggested we meet another family whose beautiful little girl is also undergoing Chemotherapy for Neuroblastoma. It was really nice to be able to relate to someone else for a minute but our heart aches for them. Their situation is slightly different but also very similar. Audrey and their baby girl were diagnosed within a day of each other and were inpatient at the same time. They were both in to start their third cycle Tuesday and we were able to chat for a little while before poor Audrey got irritable and then sick :( It was at the very end of the long day and she probably needed her nausea med sooner. She was pretty sleepy the rest of the day.

Wednesday and Thursday were short days. It only took about two hours from checking in to leaving. Crazy how fast two hours goes by when you have just been in for over 8 the day prior. So now we are back at the waiting for her levels to dip phase. She will go in next Wednesday to check in and Thursday she will see her cardiologists. We also see her pediatrician next week for the first time since she sent us to the ER in August. We hope and pray that we can have another smooth couple of weeks and we can take on cycle 4 without any complications.

Today Galen sent me a picture of an adorable gift basket for Audrey that was dropped off at his store, in addition to $$ from fundraising that was setup through work. We are basically speechless at this point. We seriously work with the GREATEST people. I don't know how we will ever truly show our gratitude for the generosity that we have seen throughout the last couple of months but we will certainly try!

We will update next week but hopefully it will be a boring one ;)

No comments:

Post a Comment