I have been meaning to post an update on Audrey's health for months now. Since the last update she has had two sets of rescans. With each scan the tumor has appeared smaller and is the tiniest little nothing at this point. Her hair has come back nice and thick and is finally about long enough to put in the teensiest pigtails! We just celebrated her 2nd birthday on the 5th (actual bday Oct 3rd) and boy did we have fun! She is completely on track for growth and development and has certainly continued to develop a unique personality. Her favorite things lately have been going to story time with Grandma and Little Gym with mom or dad.
I believe since we posted she has also had two follow ups with her cardiology team. Audrey is still taking the heart medication she has been on since she was a month old. At our last visit, however, the doc suggested we can start tapering her off at her next appointment in 6 months. This is AMAZING news as they had prepared us for years of this medication. To think that we could be at the point that Audrey is on NO medication is beyond exciting! At times when Galen and I really sit and think about how much we have been through with our little Bug it is a little overwhelming. Audrey has overcome so much in such a short period of time and never has her demeanor changed. We still get comments on her easy going attitude and though she can be plenty sassy and opinionated we are so blessed that she is such a positive and laid back kiddo.
I believe since we posted she has also had two follow ups with her cardiology team. Audrey is still taking the heart medication she has been on since she was a month old. At our last visit, however, the doc suggested we can start tapering her off at her next appointment in 6 months. This is AMAZING news as they had prepared us for years of this medication. To think that we could be at the point that Audrey is on NO medication is beyond exciting! At times when Galen and I really sit and think about how much we have been through with our little Bug it is a little overwhelming. Audrey has overcome so much in such a short period of time and never has her demeanor changed. We still get comments on her easy going attitude and though she can be plenty sassy and opinionated we are so blessed that she is such a positive and laid back kiddo.
At the end of April we took a quick trip to Disneyland to celebrate the end of treatment and Audrey's recovered immune system. It was a fun and exhausting trip and we will be sure to return when Audrey can appreciate the experience a little more. We also had an amazing beach vacation this summer at the Oregon coast and Audrey couldn't have enjoyed it more. What kid doesn't love a sandy beach!? We just recently took her to her first baseball game to see the Mariners play for the last game of the season. She loved it! The cheering, dancing around and charming all of those around her was right up her alley. Meeting the Moose was not on her list of things to do apparently so we quickly stepped away when mommy got us too close!
Her next set of scans should be end of November and then again Feb before they are spaced out to 6 months apart. We are very much looking forward to celebrating this Holiday season as the last two have been a little tough.
We will try to post again soon but likely after her next scans.
Thanks for following our story!
-Shannon, Galen and Audrey
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